Genotyping for Progress in Hemophilia


voices for progress

community leaders step up to advocate for change

  • "The more hemophilia patients we genotype today, the more equipped we will be to inform the scientific advances of tomorrow."~ Barbara Konkle, MD
    Director of Clinical and Translational Research
    Bloodworks Northwest
  • "Unlocking the secrets within us will contribute to further understanding the nature of hemophilia and how it might be better treated in the future." ~ Glenn Pierce, MD, PhD
    Research Scientist
  • "Through this program, ATHN and its affiliated treatment centers will be able to offer its patients a free genotyping test, which is a great benefit to the providers and to the patients."~ Diane Aschman
    President and Chief Executive Officer
    American Thrombosis and Hemostasis Network
  • "We're all here today because others in our community stepped up… volunteering to give just a small blood sample for this initiative may help you and your family, but it could also change the lives of a new generation." ~ Val Bias
    Chief Executive Officer,
    National Hemophilia Foundation
  • "MLOF is an incredible working partnership that can be an example to other disease groups." ~ Dr. Marion Koerper,
  • "As a company born from a legacy of innovation and commitment to serving people with blood disorders, Bioverativ is proud to support this unprecedented initiative." ~ Jaime Morales, MD, FAAP
    Executive Director, Medical Affairs
  • have you been genotyped?Tell us your genotyping story and become a voice for progress.
  • "When I think of MLOF, the word 'hope' comes to mind." ~ Guy Law,
    MLOF Participant
  • "I hope my participation in MLOF can positively impact families with hemophilia in the future." ~ Kenny Stocker,
    MLOF Participant
  • "My Life, Our Future gave me power over my disease. It took a level of uncertainty out of the equation." ~ Danielle Nance,
    Hematologist, My Life, Our Future Participant, Mother to Son with Hemophilia
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  • "I am thrilled to offer this service to all of my patients. Genotyping is the key to unlocking the secrets of hemophilia. We are hopeful that this program will not only help individuals and their families today, but also help improve care for future generations."~ Lisa Baker, Hemophilia Nurse
    Hemophilia Treatment Center of Central Pennsylvania
    at Penn State Milton S. Hershey Medical Center
  • "MLOF is a tremendous service to the hemophilia community, now and in the future."~ Dr. Michael Tarantino
    The Bleeding and Clotting Disorders Institute
    Peoria, IL
  • "I am hopeful that researchers will be able to study the data and samples included in the MLOF Research Repository to answer questions such as, ‘Why does hemophilia affect siblings differently – or in some cases, not at all,' which have remained mysteries for too long."~Deborah Bennett
    Research Manager/Coordinator at Mary M. Gooley Hemophilia Center in Rochester, NY
  • "Patients and families feel empowered knowing they can contribute to the future of hemophilia research and benefit the community."Sarah Gonzales, BS MT (ASCP), CCRP
    Grants Manager and Research Coordinator at the Bleeding and Clotting Disorders Institute (BCDI) in Peoria, IL
  • add your voice