Genotyping for Progress in Hemophilia

 
 
imporatance of research

Participants like you across the country have helped create the world's largest genetic hemophilia repository, the My Life, Our Future Research Repository, a collection of samples and data for scientific study.

During the first review cycle in early 2017, research applications were evaluated by the MLOF Research Review Committee, an independent, international multidisciplinary group of experts, including a molecular pathologist, genetic counselor, research scientist, molecular biologist, genetic epidemiologist, two hematologists, and a non-physician patient representative.

Seven research projects were accepted based on scientific merit and level of benefit to those with bleeding disorders. Projects will investigate inhibitor development, bleeding specific to hemophilia A and B, as well as carriers, and F8 clearance. Check back regularly to learn more about the approved research projects.

Are you a researcher interested in applying to access the My Life, Our Future Research Repository? Visit ATHN.org/MLOF or contact MLOFresearch@athn.org for more information.