Genotyping for Progress in Hemophilia


our commitment to your privacy

The National Hemophilia Foundation (NHF) respects the privacy of every individual who visits our websites or requests information. This notice explains our online information practices, and links to it are posted conspicuously throughout the websites. By visiting the websites, you accept the practices described in this notice.

information collection and use

NHF is the sole owner of the information collected on this site. We will not sell your information to others outside of NHF.

NHF collects data from visitors to the site via various registration forms. Completion of any of these forms is optional. Information collected via the form is entered into the NHF database. The visitor will be placed on a list to receive NHF e-mail communications (NHF e*Notes, medical advisories, notices of importance to the bleeding disorders community and others), as well as occasional communications by regular mail. Visitors who do not wish to receive communications from NHF have the opportunity to opt out at any time. Form completion also allows visitors to register online for specific events, make donations online to NHF and join NHF or renew membership.

At no time is visitors' personal information shared with any individual, company, sponsor, vendor, organization or other entity outside of NHF, except for fulfillment and mailing houses contracted by NHF for the sole purpose of disseminating NHF medical, program and promotional materials.

traffic data

Each time a visitor comes to an NHF Web site, we count, track and aggregate the visitor's activity into our analysis of general traffic flow at our sites (where traffic originates, how it flows within NHF sites, etc.).

Except as stated in this privacy policy or at the time of collection, a user's personally identifiable information will not be transferred to an outside party. NHF may also disclose account information when we have reason to believe that disclosure is necessary to identify, contact or bring legal action against someone who may be intentionally or unintentionally causing injury to or interference with NHF's rights or property, other users, or anyone else that could be harmed by such activities.

our commitment to children's privacy

Protecting the privacy of the very young is important to us. For that reason, we do not maintain information on our Web site from those we actually know are under 13.

data security

We have in place physical, electronic and managerial procedures to protect the information we collect online. However, as effective as these measures are, no security system is impenetrable. We cannot guarantee the security of our database, nor can we guarantee that the information you supply will not be intercepted while being transmitted to us over the Internet.


NHF's websites include links to other online resources. NHF is not responsible for the privacy practices or information on other sites. We encourage our visitors to read the privacy statements of every website they visit.

use of cookies

A cookie is a small amount of data that is sent to your browser from a web server and stored on your computer's hard drive. We use cookies in a limited way to help deliver information, to identify unique browsers that visit us and to track usage throughout our site.

The information about readership and site usage that NHF collects through cookies is aggregated into general reports about readership and is not tied to individual identities.