Recognizing that the path to progress is best paved by knowledge and commitment, leaders in our community have come together to advance hemophilia understanding and catalyze groundbreaking research. By making it possible for people affected by hemophilia to access free free genotyping nationwide, it is our goal to empower this generation to define the next standard of care.
While every partner holds a distinct role, we share a common dedication to accelerating progress for the hemophilia community.
"Through this program, ATHN and its affiliated treatment centers will be able to offer its patients free genotyping, which is a great benefit to the providers and to the patients."
~ Diane Aschman
President and Chief Executive Officer
American Thrombosis and Hemostasis Network
ATHN is a non-profit organization committed to advancing and improving care for individuals affected by bleeding and thrombotic disorders. ATHN’s mission is to provide stewardship of a secure national database, adherent to all privacy guidelines, which will be used to support clinical outcomes analysis, research, advocacy and public health reporting in the hemostasis and thrombosis community. ATHN represents more than 130 hemophilia treatment centers.
In this partnership, ATHN ensures the secure collection and storage of information, oversees the research review committee operations, and supports HTCs that offer the My Life, Our Future program.
For more information about ATHN, please visit www.athn.org.